Monday, January 26, 2009

More news

Brandon had the hard cast put on his wrist. The wrist is broken. He will need to wear this cast for another 3 weeks, then back to Dallas to have it removed and have a brace placed on the wrist. Brandon also will get a new brace for his foot. He has not been able to walk on the foot with a shoe on without the hard brace. The new brace will be more flexible and a new 70's design. Brandon is a little anxious about getting another brace. He is very happy wearing the hard brace most of the time.
The bad news - it looks like the foot is again turning inward and Dr Birch believes we will need more surgery. He also said that this surgery to repair more tendons will not be as invasive as the last. I am choosing at this point to not ask too many questions until Dr Birch tells me we have to do this next surgery. I want to try and get through the broken wrist and the new brace first.
Brandon is scheduled to see a new doctor this week. The doctor is a metabolic genetic doctor. This is the only physician we have not seen to help determine a diagnosis for the foot. Again we may never know why both feet are cavernous or why he continues to break bones, but I want to say that I have tried all the tests before I give up on a diagnosis. We still have more genetic tests to run. A little good news, Brandon's scoliosis is now at 38% but his bones have developed enough that they are hopeful it will not get much worse.

Brandon is in good spirits, watched the inauguration and loved every minute of the up to date coverage. Of course he was hoping Paul McCartney would be one of the guest artists or that the Beatles would reunite for the event. More later.

Sunday, January 18, 2009

New Setback

Well just when things were starting to look pretty good we have had another setback. Brandon was running (as best he can) in gym with another student and he fell on his wrist. We did not think Brandon had broken his wrist, but Brandon insisted he had broken it. I took him to the hospital and sure enough, it is broken. Brandon has a cast on the right arm from the the fingers to around the elbow. The still is wearing the brace on the right foot so he is a little unstable right now. He really looks miserable but is making the best of it. Scottish Rite has agreed to set the wrist next week when we return for a check on the foot. We are trying to take it easy this three day holiday until the new cast can be placed next week. I have to say he is a real trooper. No stopping at the Willie Museum on the way up or back this time. Leah