Thursday, July 11, 2019

Free at Last

Eddie Ray Band with fans

At my last post Brandon was anxious to finally take his own bath and therefore be back to his own independence as he knows it.  This weekend his wound was finally declared closed.  Brandon was beyond excited and took his first independent bath since February.  For him life is closer to normal.  He has been restricted from having too much activity until the wound completely closes.  I am still going to have him take it easy for a few more weeks and then resume full work, horseback riding, physical therapy sometime in August.  So big celebration - this is the first time in 25 years that Brandon does not have a hole in his stomach for feeding.   Free at last with his more independence in eating and self care.  Brandon is beyond excited.

I am hoping that the rest of the summer is free of new medical conditions or treatments and Brandon can just enjoy being Brandon.  In Sept. we follow-up on scoliosis and osteoporosis with a new bone density test to check the effectiveness of the treatment of forteo, the change in diet and the supplements in hopes this has improved his scores.  I am anticipating they have improved.

In Nov. Brandon goes back for his first cancer check.  I am also anticipating Brandon will continue to be cancer free.

I think he is due for all good news.

In the meantime Brandon's band has been playing various gigs around town.  Brandon and all the band members are loving it.  For Brandon it is the highlight of his life right now.  You can check them at 3rd Thursdays at Belterra and playing events around town.

I had to take a break from interviews for Brandon's love of asking people who love the Beatles about how the Beatles music has impacted their lives since the diagnosis of cancer.  Brandon would have loved to just continue on but it just has not been possible to take the time for the interviews and production.  Brandon wants to start back up and has already picked two more people he wants to interview.  This summer we will finish up the ones we have in production.  This makes Brandon happy.  In case you haven't seen his blog here is the link.  https://brandonbeatsblog.com/

I like it when we are back to the routine and I hope it stays this way for a long time. Not much to say except lets all hope for all good news in the future for Brandon.  He deserves it.

More later
Leah