We are getting ready for another round of surgery. Brandon will have the tendon's repaired in the left foot. We are hoping this will be the last surgery on this foot for awhile. Kristin, Brandon's aide, was going to come with us and help during the stay but she has become ill and my friend Jane has volunteered. She has no idea what she has agreed to and we will owe her a big favor after this is done. Also, thanks to Anne Rote for the use of her place while she is on vacation and while Brandon is in the hospital. It worked out for both of us. She has a house 4.1 miles from the hospital.
Brandon checks in at 6:00 pm on Sunday July 26. For those of you wanting to know how Scottish Rite works, we will check in (yes on a weekend) and then turn in all Brandon's medications during the hospital stay. Scottish Rite does not ask for payment for most of their services and they do not bill any insurance. There is no discussion of payment. You do have to qualify based on your child's condition. I have a link in the blog to their site.
Brandon will either receive the medicine from our supply or from the hopsital's if they have a supply of that drug. They do not accept the clinical trial drug (Propolsid). I will have to administer that drug. Once we go through the medications, nursing assessment and check into the room we will be free to have dinner out. By then we will be starving. Then Brandon must come back to the hospital and have no food after 10 PM. The food at the hospital is not that great so there is a regular run to local places for food during the stay.
Brandon is scheduled for surgery with Dr Birch and his team (the blue team) at 12:30 Monday. The surgery is scheduled for 2 hours and he will be in recovery around 1 hour. Monday will be a long day. I expect that we will stay Monday night, and possibly tuesday night and hope the swelling from the foot goes down enough to place a cast and leave wednesday. Thats my plan at least.
I have been packing for 1 week. It usually takes forever to find everything and get ready. Brandon's supplies just showed up at the house and we will take his own diapers and a few other supplies. Yes 16 years of diapers. However, he only uses them now at night. During the hospital stay and for the 1st month he will be back in diapers fulltime.
Also - thanks to Jody Denberg for sending Brandon a Beatles care packet to help him with his "I'm bored time". He is thrilled.
More after we check in.
Leah
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